Saturday, November 24, 2012

Happy Thanksgiving!

We had a great holiday with some of the nearby family members, and appreciate the company on Thanksgiving :) We were fortunate enough to be out of the hospital in time to celebrate the day, but could definitely not have left town, so it was wonderful to have guests come to us.

He checked into the hospital Monday, and had a feeding tube inserted into his nose in about 60 seconds flat. Unfortunately, docs required that he stay for nearly two days so they could monitor his progress. Additionally, I had to stay by his side so I could learn how to insert and care for the tube, and show the doctors that they could trust me to do this without their supervision. We thought this would be a relatively simple stay, and although in some ways it was. . . it other ways it was hectic and complicated. Doctors, nurses, medical staff and medical pump manufacturer representatives, social workers – people were in and out of the room nonstop throughout the duration of his stay. Discharge was such a relief on Tuesday night.

Our apartment has some serious medical gear now. The Joey Kangaroo pump, attached to a large pole, pushes milk from the suspended bag into his nasogastric tube and through to his stomach. The little guy gets up to 12 hours a day of tube feeding; essentially, he has a target amount to eat each day, and whatever he doesn't have the energy to eat by mouth gets pumped in overnight. The machine is noisy and requires frequent refills/cleaning/maintenance, in addition to the burping and other baby maintenance that James needs :) so we're still working on getting used to the new addition.

His new stuffed monkey from Aunt Liz is a big hit, but unlikely to keep his tail for long in James' eager hands!




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