So long ago

That ICU stay that seemed to last forever now feels distant...hard to believe how quickly we move on! But amazing also to see the changes in those few months. We went from anticipating the Fontan, to wondering whether this nightmare would ever end, to finally realizing that this is all in the past.

CHD awareness week comes around in February each year, and this year we'll post new photos of our guy with several more scars than he had a year ago.

One little update: he wore a heart monitor in December to assess whether we could stop his digoxin medication, used to control and suppress the atrial flutter that showed up after surgery last August. Results were normal but not conclusive enough so the digoxin continues for now.

Wintertime

A little photo update of these kiddos in the snow and cold! They aren't a fan of the snow so much but they both love to be outdoors.

And siblings sharing nicely :)