Our team of Doctors, who did an amazing job with the Fontan and have made some great efforts in getting him closer to going home, have admitted that no one knows much about chylothorax, why it happens, or how to fix it. The next step will be a catheterization later this week. It's a "just checking" move, which is unlikely to resolve anything, so we aren't expecting to see much progress or have much news to share.
James received a couple of care packages today, which we greatly appreciate. His "room" is now decorated with cards and pictures and there are Thomas stickers everywhere. And mommy and daddy have snacks! :)
The IV in his right hand forces him to draw with his left. He is right-handed, so it's frustrating, yet he keeps asking to color anyways. It's pretty amazing how well he manages :)
The IV in his right hand forces him to draw with his left. He is right-handed, so it's frustrating, yet he keeps asking to color anyways. It's pretty amazing how well he manages :)
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