First follow up done!

It's been a wonderful yet rocky few days. We're thrilled to have James home, but he is clearly affected by his summer ordeal. He wandered around somewhat in shock on his first night, and continued to be stiff and scared yesterday. It took 24 hours to convince him to leave the apartment again (to go to the playground) and he's been having nightmares.

His doctors wanted him back by Wednesday to follow up. It was not easy to get him back to in the hospital today. He managed like a champion, but the emotional toll is significant.

Unfortunately, today's follow up was not encouraging. The effusion has continued to progress. We are waiting for CHOP/Philadelphia to give us an appointment once they review today's test results, but we expect they'll want to see and admit him sometime next week. 

He's now having fun with his evening to start to make up for the challenging day!