The breathing tube is out and James is now on a slightly more complex version of a CPAP device: forced air with oxygen. Fluid is steadily coming off, which is good, and they plan to try reducing his different meds and oxygen concentrations overnight.
His Fontan circulation is now fully operational.
His Fontan circulation is now fully operational.
Of course, we weren't sure this was gonna happen at all today. James was off sedatives at 4 am, and it took him over 12 hours just to wake up. Slowly, he came out of his dream cloud, gave an occasional cough, shrugged his shoulders, and raised his braced arms to scratch his itchy brows.
Once awake, he was super bleary eyed and made very tiny movements, but he was awake enough to take out the tube. And as soon as it was out, so was James -- fast asleep again.
James has barely made a peep all evening, with super hushed "yesses" when asked if he wanted water, and only one itty bitty croak to indicate he wanted to move a little to be more comfortable. So, we moved him, gave him a wet sponge to chew on, a few minutes of a Thomas video to zone out on, and he promptly fell right back to sleep -- again :)
Since then, they've reduced his meds drastically already, lowered his forced air pressure, and removed just about all his IVs and drips from the bedside.
Tomorrow, we're expecting him to be a lot more lively, but after a very quiet start, James gave us a nice happy busy evening.
One more hurdle cleared.
Once awake, he was super bleary eyed and made very tiny movements, but he was awake enough to take out the tube. And as soon as it was out, so was James -- fast asleep again.
James has barely made a peep all evening, with super hushed "yesses" when asked if he wanted water, and only one itty bitty croak to indicate he wanted to move a little to be more comfortable. So, we moved him, gave him a wet sponge to chew on, a few minutes of a Thomas video to zone out on, and he promptly fell right back to sleep -- again :)
Since then, they've reduced his meds drastically already, lowered his forced air pressure, and removed just about all his IVs and drips from the bedside.
Tomorrow, we're expecting him to be a lot more lively, but after a very quiet start, James gave us a nice happy busy evening.
One more hurdle cleared.
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